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Archive for April, 2009

Appt went great!

Another mobile blog post here. I just don’t have the time to sit down and open my laptop some weeks. The ENT appt went well. His tubes are still in place and wide open. Dr. G asked a lot of questions about Lukes speech & feeding therapy, general development, hearing, and his follow up appts [...]

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ENT Today

We’re going to see Dr. Gardner today to have him peek at Lukie Boo’s ears to make sure his tubes are in place and wide open. I forgot this appt last month the day after I was supposed to go so now we’re finally getting around to it! Opps!  Speech therapy was a bust today. [...]

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I meant last week to write about his developmental therapy and what’s been going on there. I get sidetracked very easily and tend to go days without opening my laptop. I probably wouldn’t get on the internet for a week at a time if it weren’t for my iphone.  Anyways, we DID get a new [...]

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This link from Wikipedia about PKU is a super quick read and will explain much better than I can what all the hubbub is about around our house.  I’m trying not to be obsessive since Nick is the one that holds that title in our household but I’m not doing a very good job.    On [...]

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I don’t proofread

If you haven’t noticed, I don’t proofread before posting.  I read my old posts sometimes to see just how far Luke has come and to look back at his changes. That’s when I notices the typos.. lol It’s not a spelling issue, dear old Mac catches that for me.  So, bear with me as I [...]

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Ball caps are TOO grown up

This cap really makes him look older than he is! Yikes! I’m not sure I like it really. He loves wearing hats and chooses to wear them inside during the day. He also knows to grab his hat that hangs on his hook by the door when we tell him he can go outside! He [...]

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He did it!

Well, he did it and was a trooper! I think if he didn’t have to be touched by someone else he might not have cried! We should have results sometime within the week. This hotos was taken when we got home. Still looking a little sad. Poor guy!

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By now you’ve probably heard about Nicks post here about Luke’s urine inborn error screen. And you’ve probably already read what it’s about here when I posted several weeks ago.  Today we’re going to ACH for a serum amino blood test. It will take only a few days to process and get the results back which is [...]

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We got the call today that Luke’s Inborn Error Screening results are in and the doctor has reviewed them.  The findings: Slightly hypoglycemic, slightly elevated amino acids.  In other words, it’s somewhat inconclusive.  Since this was a urine test, the doctor ordered a serum amino test, which will measure these levels and other things directly from the [...]

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Ok, so let me do a quick catch up on what’s been going on at therapy for the past couple of week.  SPEECH – Luke is really starting to trust C more in the baby room. She had us reschedule his swallow study for a sooner date since Luke didnt eat for a 2 week [...]

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